My baby was was yellow at 8 days old. The doctors (in Pakinstan) said to change his blood so we gave him 0 negative blood. I breastfed him and at 40 days old his belly got very big. The doctors say it is galactosemia but he will be okay. We did an ultrasound and it shows water in his belly. He now only has one kidney. They do not know about galactosemia here. We did testing in India. His blood is B positive. What can I do I am worried. He is now 4 years old but has speech problems.
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.