My child has been diagnosed with sepsis. The first doctor we saw said the newborn screening test said my child probably had DG. So we went to another specialist that doctor took more bloodwork, we have been waiting 4 months for the results. In the meantime my child has gotten very sick. We are currently in the hospital trying to treat the sepsis. They have ruled out that it is not the bacteria type of EColi that comes from stools. So did the breastmilk cause this? I followed my doctors' suggestion he said I could breastfeed but now I wonder if I made the right decision.
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.