My child's blood test showed he has Duarte Variant. I can not find a baby doctor that will see him. They all say they have no experience with it and to find a specialist. But I need to see someone. I am not sure what to do for formula but look online. What if my child gets sick who will I see. Is this normal, can you find me a doctor?
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.