The doctor recommended we do the milk challenge. I felt terrible giving my son milk for the first time since we found out he had Duarte. Day 1 went okay on the challenge. But Day 2 was a nightmare. She was crying in pain, like her tummy hurt. She got diarrhea and then by nighttime was vomiting. The specialist said she must have a stomach virus and insisted since we started the test we need to finish it. By Day 4 we were in the ER. Moms, please don't do this test! I want to scream it to all moms now. The ER doctor looked at me like I was crazy when I said my child has Duarte and we did a milk challenge. He asked why we didn't stop at Day 2 when she got sick. They pricked her finger and she did not have a virus or show signs of a bacterial infection it was the milk. When I called the speciailist his nurse said he was confused on how this happened. When I ask if he recommended many of the challenges and was this normal she said honestly he said he hasn't treated anyone with Duarte but your child, we are very sorry this happened. Note to moms this is an elective procedure unneeded. Now $6,800 hospital bills later I let everyone know.
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.