My Dr says it's not related by I was wondering if anyone with DG or CG kids is lactose intolerant themselves. I am and I take lactaid pills to help break down dairy. I took them while pregnant which I was told was fine but I wonder if it hurt or helped. I know it's based on genes but I still wonder if anyone else is lactose intolerant and if there is in fact some kind of link that just hasn't been connected yet.
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.