After calling over 6 doctors in my area no one has treated a child with this. I keep thinking I can do it alone and stay with a doctor with no experience but is that the only solution? All the doctors we have seen say something different. Is there a book on this that I can show my doctors?
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.