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Lactose Intolerant

2/18/2016

 
My Dr says it's not related by I was wondering if anyone with DG or CG kids is lactose intolerant themselves. I am and I take lactaid pills to help break down dairy. I took them while pregnant which I was told was fine but I wonder if it hurt or helped. I know it's based on genes but I still wonder if anyone else is lactose intolerant and if there is in fact some kind of link that just hasn't been connected yet.

​L. S.

Speech Delays

2/18/2016

 
Hey everyone! I was wondering (more from people with school aged DG children or someone that is DG themselves) what the specific types of speech issues are (if any) they have encountered. My son recently turned 3. She has a large vocabulary for his age. He went through a short phase with a stutter, which all of my 4 children did between 1-2 years. But now, in the past 6 months, the stutter is gone but he draws out the beginning sounds of words. It's like he gets stuck on the word and has trouble getting past the first sound. Some days it is worse than others and some days he doesn't do it at all. Anyone else experience this? Or have tips on working with him on it?
Our primary care provider did food tolerance testing on him a while ago and of course dairy was an interolerence, and so was gluten along with a pretty long list of other things. We noticed when he sneaks more gluten in his diet (at the sitter or with grandparents) his speech is more delayed. Any other DG kiddos with a long list of food interolences? Thanks!

​J. M.

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    These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.

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  • Welcome
  • What is Galactosemia?
    • New Mom Info
    • Classic Galactosemia
    • Duarte
    • Galactokinase Deficiency Galactosemia
    • Epimerase Deficiency
  • Genetics
  • WHAT DIET TO FOLLOW?
    • TEMPLATES
  • DUARTE SUPPORT
    • Duarte New Mom Info
    • DG MOM STORIES
    • GALT MOM STORIES
    • DUARTE DIET/NCD
    • DG GUIDE
    • RESEARCH STUDY
  • LINKS
  • ENCOURAGEMENT
  • CONTACT US