Our DG son is now 8. He started speech therapy at 3 and he still goes to speech at school. You can't hear very many speech problems now, but it did affect his spelling in the first grade. We have often wondered if his speech problems were truly related to Galactosemia or not.
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.