Help I am a new mom and very overwhelmed. Our ped doctor said my child maybe duarte or maybe classic. But he doesn't know what test to order to find out. HOW IS THIS POSSIBLE? So I researched online and now I am worried. I requested a second appointment I ask about what to do next. I was told to continue breastfeeding with my DG daughter that I had nothing to worry about. But in the last few weeks I have spoke to other moms online that have told me awful stories so I immediately stopped breastfeeding. When I called the doctor office back the nurse said he wouldn't see me again and to find another doctor. At this point I don't know what to do. Why won't he see me anymore? Cause I brought up serious questions he doesn't know about? Or cause my child has duarte? So I called around and this time I want to be prepared so I ask each time do you have any duarte patients, not one ped doctor in my area and even within the 200 mile insurance radius has either. Very frustrated.
Wichita Falls, TX
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.