My child is now almost 8 years old. He is DG and does well but does have some ticks. For example if he gets nervous, is trying something new, doesn't get enough sleep, if the area is too loud, or if he is sick he will get nervous ticks. These range from sucking on his shirt sleeve, opening his mouth wide over and over, biting his nails, pulling at his clothes, and repeating task. These can range from a day to a week. We tried the brushing therapy approach and it has helped. But what helps the most is keeping his life organized, explaining everything in great detail before we do things, and participating in activities he does so he sees me there and feels safe. We have seen a few doctors about it. At one time they said it was slight autism but the test showed that was not true but instead sensory. We participated in a DG research online project and I found other moms just like me. So if your child is going thru this don't worry it is manageable. But does take organization on the mom's part but I don't mind. Just spread this to other moms please.
These are true stories and messages from moms I have received since I began this journey researching DG in 2008. Sadly I didn't start foldering the messages til 2012 but please see that many are in the same boat as you-confused and with many questions. The post is not to answer these questions specifically but to post to record the issues and questions for the public.